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Little boy overwhelmed with support at fundraiser
A LITTLE boy with a terminal wasting disease was bowled over at a special fundraising event to raise money for a trip to Disneyland Paris.
Jon Tarrant-Heckford, five, from Ringwood, who has Sanfilippo syndrome and who is expected to live until he is about ten years old, was all smiles at the bowling event at the Three Legged Cross Pub on Friday, which was organised as part of the Kisses 4 Jon campaign, to raise funds a trip to Disneyland Paris in June.
Some 40 people attended the event, raising £525 with help from Ringwood traders, who donated gifts and vouchers for the raffle.
Mum Lorraine Tarrant-Heckford said: “Everybody had a fantastic time. Jon loved bowling and he was very good at it, he spent the whole evening smiling and laughing.
“We want to make some amazing memories for Jon. We want to give him as much as we can while he is so enthusiastic and before he deteriorates.
“He has already started losing some of his mobility in his legs and he is becoming weaker. One of the things that I find so heartbreaking is that his little fingers are beginning to twist.”
Jon sees specialists regularly at Great St Ormond Street Hospital and is set to begin a course of physiotherapy.
He attends Forest Park Primary School in Totton and there is a place for him at Naomi House when he needs it.
A summer ball is being organised for May 17 at Tyrrells Ford to raise more funds for Disneyland Paris.
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