Cake stall raises money for Jon

Cake stall raises money for Jon

Cake stall raises money for Jon

First published in New Forest News by

A CAKE stall at Greyfriars Pre School in Ringwood raised £170 for accessories that will adorn a specially adapted trike for a four-year-old boy with a rare genetic disorder.

Jon Tarrant-Heckford was diagnosed with Sanfilippo syndrome, which prevents the body removing waste and chemicals from the brain and nervous system in May, leaving his parents Lorraine and Steve devastated.

After hearing about Jon’s plight, Ringwood traders rallied together and raised enough funds for a new trike for the little boy, who may not live beyond his teenage years.

And now staff at Greyfriars Pre School, dubbed the Pink Ladies by parents, held a cake stall to raise enough to buy a basket, a bell and other extras to fix onto Jon’s new trike.

Manager Sue Nutburn said: “Jon attends four sessions a week and is very happy here. He loves being around the other children and his face lights up with joy when he is playing with them. Jon is very fond of the staff here, our Pink Ladies.

“He has got a brilliant sense of humour and it’s lovely to have Jon at Greyfriars.”

Mrs Tarrant-Heckford said: “It is amazing how much money you can raise out of cake - everybody loves cake.”

“I don’t know how I would have coped without Greyfriars and the amazing staff, who I call my pink angels, because that is what they are.

“Without them I honestly do not know how I would have got through the last few months, since Jon’s diagnosis. That is how much they mean to me and Jon.

“Jon loves them dearly.”

Comments (1)

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3:26pm Mon 15 Oct 12

Emsmom says...

Hi, I am a mother of a beautiful 7yr old little girl named Emily. Emily also has Sanfilippo Syndrome. We have an amazing support group if the family is not set up with one yet, that I would love to get them involved in. There are many families worldwide in this support group on Facebook. You can also find my daughter's Facebook page called, "Emily's Dance, our baby's life with Sanfilippo Syndrome" to learn more about our family. If the parents would like to be involved, please email me, lieuslady@yahoo.com. There is nothing like support from people who know exactly what you're going through. Also, they didn't mention the type of Sanfilippo in this article. Do the parents know which type he is? Thank you....another loving SF mommy xo
Hi, I am a mother of a beautiful 7yr old little girl named Emily. Emily also has Sanfilippo Syndrome. We have an amazing support group if the family is not set up with one yet, that I would love to get them involved in. There are many families worldwide in this support group on Facebook. You can also find my daughter's Facebook page called, "Emily's Dance, our baby's life with Sanfilippo Syndrome" to learn more about our family. If the parents would like to be involved, please email me, lieuslady@yahoo.com. There is nothing like support from people who know exactly what you're going through. Also, they didn't mention the type of Sanfilippo in this article. Do the parents know which type he is? Thank you....another loving SF mommy xo Emsmom
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